5 wants 5 needs

[flamingsword]

1. I want to not have a headache. I need better health.
2. I want AO3 to not be down for maintenance right now. I need entertainment when I have pain and dysfunction.
3. I want to not have to worry about whether I’m communicating clearly enough to overcome other people’s bad—faith takes and will to misunderstand me. I need to not be judged by people whose brains don’t work like mine.
4. I want Mom to stop smoking. I need to worry less about her and it not reassuring at all that she has to be on blood thinners bc she won’t give up nicotine.
5. I want to have a fancy TENS unit that can give my body sensations to a doctor ( @or other third parties) for the purpose of getting them to believe me about medical bullshit. I need people who disregard how much I hurt or how tired I am to have to put up or shut up.

Comments

[otter]

I have fantasies about #5, for sure. Just wishing there was a way to magically do that, even for 10 seconds.

[flamingsword]

It would change So Much about medicine, right? If there were a test that doctors could/would have to perform if they had any kind of communication breakdown or disbelievingness. I want that for all of us spoonies and chronic pain warriors and cripple-punks. I want it for everyone, really, but we need it more.

[sabethea]

*gentle hugs*

Now AO3 is back up, I recommend downloading some fics so you have emergency supplies for times like that happening again. I’ve been caught that way too many times and have about twenty fics downloaded…

[flamingsword]

Oh I have some fic backups, I just have read them all by now, and wanted something fluffier and crackier than those to keep my brain occupied while headache, you know? Maybe I should diversify the kinds of fic I’m downloading.

[sabethea]

No, I mean things you haven’t read. I have twenty or so things I haven’t read downloaded.

Mind you, I am so AO3 obsessed (partly because of health issues meaning I have more time than most, to be fair) that I compile lists of “fics to be read” which are about 700 long ( and all over 20k words) so my experience may be abnormal. (The month I read least in this year, I still read over 3 million words, so. Yeah. I don’t have textbooks to read, so 100k of AO3 fics is a slow day.)