(no subject)

[flamingsword]

Since I went on the extended release version of topamax last April, I have lost 30 pounds. Let me tell you why I’m not happy about that.

I didn’t care when I was unfashionably heavy or when people judged me for my weight. (Except the doctors. That part pissed me off so much.) I care when I keep having to buy new pants. I care when my bras don’t fit. I care when this medication that keeps me from having a permanent headache is eventually going to make me underweight, at which point they will stop prescribing it to me, and there isn’t anything similar that doesn’t have the same side effects as far as I know.

And then the headaches will come back. My pain levels will rise back up and I may get to the point again where I’m in too much pain to drive and think and function.

So: The Plan. The plan is to use the time I have left on topamax to find things like l-carnitine that have any kind of evidence that they spur regeneration in the brain. If you see any article that makes such a claim, could you forward it to me? Even if you think I’ve seen it, even if it may be bullshit. I’ll be doing a lot of research for this and spending my free monies on vitamins instead of fun stuff, but I am determined to make this work.

So far I have got PQQ, ubiquinol, taurine, b-1, and phosphatidyl Serine in addition to the l-carnitine and b-12/2/3/6/pantothenic acid supplements. ZOMG pillz. Wish me luck, and forward me links.

Comments

[flamingsword]

Whatever I did apparently worked. I am now on a blood pressure medicine called verapamil that is working to control the long term migraines problem but is less effective for the permanent headache stuff, but no headache came back in the transition period. I don't even get regular headaches that often.

Woo.